Knowledge, experience and burden of the attendant who have experience to manage tetraplegic sci patients attended at CRP

Abstract

Purpose: The purpose of this study was to assess the knowledge, experience and burden of the attendances who are experienced to manage tetraplegic SCI patients. Objectives: To detect the knowledge, experience and burden reported by tetraplegic patient’s attendance who are attendant at CRP. Methods: The cross-sectional study was chosen to carry out this study among 42 participants who were selected according to inclusion criteria from May 2022 to July 2022. All data were collected through a standard structured questionnaire having socio demographic, PHQ questionnaire, The Visual analogue scale (VAS), Generalized Anxiety Disorder (GAD) Scale, Zarit Burden Interview (ZBI) scale, this used to assess pain, depression, anxiety and burden among 42 participants. The inferential statistical has been calculated by chi-square test. Statistical Package for Social Science (SPSS version 20) was used for data analysis Results: Among 42 of the participants their overall age mean was 1.43 and SD was 0.547. Among them 100% participants suffer from LBP, 60% suffer from severe pain and 40% suffer from moderate pain.83.3% had moderate anxiety, 14.3% had severe anxiety and 2.4% had mild anxiety. 38.1% of the participants had severe depression, 45.2% had moderately severe depression, 16.7% had moderate depression. 78.6% of the participants had high burden, 21.4% had mild to moderate burden. Statistically significant association also found in between some socio- demographic information and VAS score, GAD-7 score, PHQ-9 score and ZBI score. such as age and VAS (P<0.002), occupation and GAD (P<0.05), gender and ZBI (P<0.03), occupation and PHQ (P<0.01), VAS score and PHQ score (P<0.01).In this study the participant’s knowledge about caregiving was relatively good but physical health, mental health, social quality of life was poor. Conclusion: The research highlights that carers assume their roles in early-middle age and may persist as primary carers for several decades. The results of the study suggest that low back pain, depression and anxiety are commonly experienced during caregiving a long period of time. Female attendants are more suffer from LBP severity during managing the patients. Physical health and mental health may worse over time that’s why attendant felt a huge burden in their life. It not only affects the attendant’s life but also affect patients life as well as their prognosis. Key words: Knowledge, Low back pain, Anxiety, Depression, Burden.