Health related quality of life of the person with guillain-barre syndrome (GBS)

Abstract

Purpose: To assess the health related quality of life of the person with GBS attending at specialized rehabilitation centre. Objectives: To evaluate the health related quality of life of GBS patients through the evaluation of physical functioning (PF), Role-emotional (RP), Bodily pain (BP), General health (GH), Vitality (VT), Social functioning (SF), Roleemotional (RE), Mental health (MH). Methodology: It was a cross-sectional study. Total 45 participants were selected conveniently for this study from Neurology Unit, Centre for the rehabilitation of the paralyzed (CRP), Savar, Dhaka. Data was collected by using a semi-structure questionnaire and health-related quality of life (HRQOL) was assessed by the Short Form-36v2 (SF-36v2) health survey questionnaire. The study was conducted by using quantitative descriptive analysis (Chi-squire test & Pearson correlation test) through using Statistical Package for the Social Science (SPSS) software 25.0 version. Results: Among 45 GBS patients evaluation, the majority are male 84.40% (n=38) participants and female are 15.60% (n=7). About 2.20% (n=1) participants were within healthy state, 6.70%(n=3) participants were within minor symptoms and capable running, 57.80% (n=26) participants were within Able to walk 10m or more without assistance but unable to run, 28.90% (n=13) participants were within Able to walk 10m across an open space with help, 4.40% (n=2) participants were within Bedridden or chair bound. Among SF36 domains Bodily pain (77.69±21.23) and Mental health (75.58±11.04) has shown good functional improvement rather than other domains. General health (61.67±11.18) & Vitality (68.76±9.30) has shown fair functional improvement and Physical functioning (47.84± 24.83), Role of physical (36.02±14.09) & Emotional (41.98±11.43) status, Social functioning (41.98±14.89) has shown poor functional improvement. The lowest mean score indicate the poor quality of life and highest mean score indicate the good quality of life. There is a significant association between gender of participants and GBS disability score (P<0.05). Conclusion: GBS is an auto-immune condition which causes individual’s quality of life declining. The GBs affected persons reported low scores on all of the SF-36 dimensions that characterize poor quality of life (QOL) among all. The study demonstrated that GBS greatly affects quality of life and gives rise to more problems, especially in the areas of physical and mental health. It is necessary to take steps to improve the physical vi and emotional status of persons with GBS, as this will eventually lead to improvement in their quality of life. Key words: Health related quality of life (HRQoL), Person with Disability (PWD), Guillain-Barre Syndrome (GBS).