Quality of life of parents having child with autism.

Abstract

Back ground:-Bangladesh is on top the populated and progressing country. Among those population, 16 million people with disabilities. Autism spectrum disorder (ASD) mention to a group of complex neurodevelopment disorders distinguished by tedious and characteristic patterns of behavior and struggling with social communication and interaction. In Bangladesh, autism in children is a significant burden of condition among disabilities. Parents having child with ASD lead a stressful and ungraded quality of life (QOL). This Study has explored the challenges of QOL of parents and inspects their experiences and barrier as they face rising a child with ASD. Aims:-To point out the challenges in quality of life of parents having child with Autism. Methodology:-The study has revised with cross sectional prospective study with 80 participants who are parents having child with ASD. This is the design of a non experimental study.The research has done in one time or in a little term. Maximum participants have selected from special school, Therapeutic clinic, Centre in Dhaka city where their child meet for education, intervention, treatment and training. Researcher has used organized structural questionnaire of WHOQOL-100 BREF with physical, psychological, social and environmental domain along with the socio demographic data. The data has presented on the basis of research objectives and research question. Data has arranged, entered and tabulated in computer SPSS to present the findings of the study. Simple descriptive statistics such as frequency, percentage, mean score, standard deviation has used for basic analysis of data. Results:-In this study among 80 participants the researcher has trying to see association between age, gender, educational level with physical, psychosocial, social and environmental domains. Association between age and Physical well-being and Age and Social well-being of parents having child with Autism Spectrum Disorder examined by chi- square test and result .020,.012 which associations were significant (p<0.05). Other association between age, gender, educational level with psychosocial, physical, environmental well-being examined by chi-square test and result 0.119, 0.320, 0 .746, 0 .746, 0.454, 0.433, 0.892, 0.706, 0 .603, 0.105 which assoc iations were not significant (p>0.05). Conclusion: -The findings may be hypothesized, if QOL can evaluate further and follow it for a few years. The result further suggests that the connection between variables with different domains at QOL levels is not universal. The study could Page 2 of 86 further enhance the initial campaign planning assumptions for rehabilitation professionals Key words: - Autism Spectrum disorder, Quality of life.