Family quality of life when children with cerebral palsy

Abstract

Background: Study of the family quality of life (FQOL) has been extended as a new field of the developed countries. Family-centered services mean that the needs of all family members should be considered and the involvement of all family members should be encouraged. Parents of disabled children still face huge stigma and it may see continuously in rural areas. This often stops them from seeking help, because they feel ashamed. Main caregiver specially father and mother may lead a painful life because of their children functional limitation.They show higher levels of stress and worse mental health when compared to parents of children without developmental disabilities and the general population. Family Quality of life research indicates that there is little understanding about how family members may differentially perceive and assess their quality of life. Objectives of the study This study was intended to the level of Family Quality of life parents of children with Cerebral Palsy. Also explore the relationship and determine the association between age, sex, educational status, employment status, community types, family types & five components of the FQOL. Methodology The study was conducted through cross sectional study. Researcher selected convenience sampling technique from the population who meet the inclusion criteria and exclude those who did not meet the criteria. The study area was paediatric unit of CRP, Savar, Dhaka and William and Marie Taylore School, CRP, Savar, Dhaka. Result and Discussion After analyzing data, it was found that the fathers‟ level of satisfaction about FQOL was 3.27 which was neither satisfied or neither dissatisfiedaccording to the FQOL Scale and mothers level of satisfaction was 3.47 which was neither satisfied or neither dissatisfiedaccording to the FQOL Scale. Conclusion In closing, this study represents a first step in exploring the level of satisfaction of fathers and mothers with respect to their assessments of FQOL. The results highlight that fathers do not differ from mothers in assessing their overall FQOL. Kew Words:Perspective, Cerebral Palsy, Quality of Life, Family Quality of Life.